Unlocked - An Oral History Of Haden's Syndrome

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Twenty-five years ago, doctors and hospitals were receiving their first cases of the disease that was initially misdiagnosed as a variant of the Influenza A virus subtype H5N1, and then briefly known as “The Super Bowl Flu,” and “The Great Flu,” and then finally, after the full extent of the damage it could cause was known, named “Haden’s syndrome.” The disease would claim millions of lives and sentence millions more to “Lock In,” a paralysis of the body that leaves the mind fully functional.

Between that first appearance and today, our nation and the world has experienced the tragedy of the onset of the disease, the triumph of the technological and social response to its challenges, and the aftermath of both—positive and negative—on our culture and the world we live in.

This document is the result of interviews with many of the doctors, scientists, politicians, and ordinary people who were instrumental in both our understanding of Haden’s syndrome and our national and global response to it. While no single document can comprehensively chronicle the effects and changes to our world that Haden’s syndrome created, the goal with this document is to give those who were born after its onset—some of them now fully adults—a screenshot of how the generation before them responded to what is now considered the single greatest public health challenge the planet has experienced.

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